“Nobody knows, or seems to know how rheumatology and breastfeeding works”: Women's experiences of breastfeeding whilst managing a long-term limiting condition – A qualitative visual methods study
MetadataShow full item record
Background Only around 1% of babies in the UK are breastfed exclusively until six months of age as recommended by the World Health Organisation. One in ten women who have recently given birth in the UK have a long-term illness and they are at increased risk of stopping breastfeeding early. We considered women with autoimmune rheumatic diseases as an exemplar group of long term illnesses, to explore the barriers and enablers to breastfeeding Aim To understand the experiences of infant feeding among women with autoimmune rheumatic diseases and to identify potential barriers and enablers. Design Qualitative visual timeline-facilitated interviews. Participants and setting 128 women with autoimmune rheumatic diseases who were considering pregnancy, pregnant, or had young children took part in an online survey as part of the STAR Family Study. Of these, 13 women who had children were purposefully sampled to be interviewed. Interviews took place in person or on the telephone. Timeline-facilitated interviews were used to focus on lived experiences and topics important to the women, including early parenting. We conducted a focused thematic analysis of women's lived experiences of infant feeding. Results Three main themes were identified in relation to breastfeeding: lack of information about medication safety, lack of support in decision-making and maintaining breastfeeding, and maternal guilt. Conclusions Women with autoimmune rheumatic diseases found it difficult to access the information they needed about medications to make informed decisions about breastfeeding. They often also felt pressurised into breastfeeding and experienced feelings of guilt if they were unable, or did not wish to breastfeed. Tailored interventions are required that adopt a non-judgmental and person-centred approach to support decision-making in regard to infant feeding, providing women with information that can best enable them to make infant feeding choices.
Williams, D., Webber, J., Pell, B., Grant, A., Sanders, J., Choy, E., Edwards, A., Taylor, A., Wu, M.C. and Phillips, R. (2019) “Nobody knows, or seems to know how rheumatology and breastfeeding works”: Women's experiences of breastfeeding whilst managing a long-term limiting condition–A qualitative visual methods study', Midwifery, 78, pp.91-96.
Article published in Midwifery available open access at https://doi.org/10.1016/j.midw.2019.08.002
- Export 
Showing items related by title, author, subject and abstract.
Development of a novel motivational interviewing (MI) informed peer-support intervention to support mothers to breastfeed for longer Phillips, Rhiannon; Copeland, L.; Grant, A.; Sanders, J.; Gobat, N.; Tedstone, S.; Stanton, H.; Merrett, L.; Rollnick, S.; Robling, M.; Brown, A.; Hunter, B.; Fitzsimmons, D.; Regan, S.; Trickey, H.; Paranjothy, S. (BMC / Springer, 2018-04-11)Background Many women in the UK stop breastfeeding before they would like to, and earlier than is recommended by the World Health Organization (WHO). Given the potential health benefits for mother and baby, new ways of ...
A novel peer-support intervention using motivational interviewing for breastfeeding maintenance:a UK feasibility study Paranjothy, S.; Copeland, L.; Merrett, L.; Grant, A.; Phillips, Rhiannon; Gobat, N.; Sanders, J.; Fitzsimmons, D.; Hunter, B.; Regan, S.; Playle, R. (NIHR Journals Library, 2017-12)Background In total, 81% of women in the UK start breastfeeding, but fewer than half continue beyond 6 weeks. Peer support in the early postnatal period may encourage women to breastfeed for longer. Objective To develop ...
A cross-sectional survey of the knowledge, attitudes and influences affecting the pre-pregnancy perception of breastfeeding in women from different cultural backgrounds Bowen, Alison Margaret (Cardiff Metropolitan University, 2008)Breastfeeding initiation rates in the UK are amongst the lowest in Europe, despite its unequalled and unparalleled health benefits for mother and infant. This research aimed to assess the factors that affect the knowledge, ...