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Receiving a diagnosis of Pernicious Anaemia: exploring experiences of relationships with health professionals

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Author
Glover, E.
Seage, Heidi
Mercer, Jenny
Date
2019-11-26
Acceptance date
2019-09-21
Type
Article
Publisher
SAGE
ISSN
2374-3743
Metadata
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Abstract
Objectives: Pernicious Anaemia (PA) is a chronic condition caused by vitamin B12 deficiency. This is a qualitative study using interpretative phenomenological analysis (IPA); which aimed to explore the patients lived experience of diagnosis and treatment. Methods: Eleven semi-structured interviews were conducted with PA patients, these covered participants’ diagnostic and treatment journeys, the responses of others to their diagnosis and the role health professionals have played in their medical care. Interviews were analysed for recurrent themes using IPA. Results: Three superordinate themes were identified: ‘The struggle to achieve a diagnosis’, ‘The significance of a diagnosis’ and ‘Battling for sufficient treatment’. Participants were dissatisfied with their medical care due to diagnostic delay, insufficient treatment and poor relationships with their health professionals. Many experienced, anticipated, and internalized stigma, which led to a reduced quality of life and withdrawal from the medical profession. Discussion: Participants’ interactions with their health professionals hindered their adaptation to their condition this affected their psychological and physical wellbeing. Increased clinician awareness of stigma in the PA population symptoms and effective patient-centred communication is required.
Journal/conference proceeding
Journal of Patient Experience;
Citation
Seage, C.H., Glover, E. and Mercer, J. (2019) 'Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals', Journal of Patient Experience, p.2374373519883497. DOI: 10.1177/2374373519883497
URI
http://hdl.handle.net/10369/10769
DOI
https://doi.org/10.1177/2374373519883497
Description
Article published in Journal of Patient Experience on 26 November 2019, available open access at: https://doi.org/10.1177/2374373519883497.
Rights
https://creativecommons.org/licenses/by-nc-nd/4.0/
Sponsorship
Cardiff Metropolitan University (Grant ID: Cardiff Metropolian (Internal))
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  • Health and Risk Management [392]

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