Receiving a diagnosis of Pernicious Anaemia: exploring experiences of relationships with health professionals
MetadataDangos cofnod eitem llawn
Objectives: Pernicious Anaemia (PA) is a chronic condition caused by vitamin B12 deficiency. This is a qualitative study using interpretative phenomenological analysis (IPA); which aimed to explore the patients lived experience of diagnosis and treatment. Methods: Eleven semi-structured interviews were conducted with PA patients, these covered participants’ diagnostic and treatment journeys, the responses of others to their diagnosis and the role health professionals have played in their medical care. Interviews were analysed for recurrent themes using IPA. Results: Three superordinate themes were identified: ‘The struggle to achieve a diagnosis’, ‘The significance of a diagnosis’ and ‘Battling for sufficient treatment’. Participants were dissatisfied with their medical care due to diagnostic delay, insufficient treatment and poor relationships with their health professionals. Many experienced, anticipated, and internalized stigma, which led to a reduced quality of life and withdrawal from the medical profession. Discussion: Participants’ interactions with their health professionals hindered their adaptation to their condition this affected their psychological and physical wellbeing. Increased clinician awareness of stigma in the PA population symptoms and effective patient-centred communication is required.
Journal of Patient Experience;
Seage, C.H., Glover, E. and Mercer, J. (2019) 'Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals', Journal of Patient Experience, p.2374373519883497. DOI: 10.1177/2374373519883497
Dynodwr Gwrthrych Digidol (DOI)https://doi.org/10.1177/2374373519883497
Article published in Journal of Patient Experience on 26 November 2019, available open access at: https://doi.org/10.1177/2374373519883497.
Cardiff Metropolitan University (Grant ID: Cardiff Metropolian (Internal))
Yn dangos eitemau sy’n perthyn drwy deitl, awdur, pwnc a chrynodeb.
The views of Speech and Language Therapists regarding the approaches to, and issues surrounding the diagnosis and treatment of Developmental Verbal Dyspraxia Rigden, Amy (2018-04-01)Background: There is currently no validated list of diagnostic features to determine the differential diagnosis of Developmental Verbal Dyspraxia (DVD), nor has there been any optimum assessment and management approaches ...
Receiving a mental health diagnosis: An exploration of service users’ experiences and staff responses to emergent themes Burchett, Nicole (2018)In recent years, the personal and financial cost of mental illness has gained attention in the UK. Research indicates mental illness will affect one in four of the population at some point in their lives. This statistic ...
Autism Spectrum Disorder and Asperger’s Syndrome: An Exploration of the Female Diagnostic Experience Markham, Elaine (Cardiff Metropolitan University, 2017-06-01)Current research regarding autism has established gender inequity in diagnosis, with the focus of diagnosis and phenotypic understanding as male dominated and biased in construction. This suggests for high-functioning ...