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dc.contributor.authorGlover, E.
dc.contributor.authorSeage, Heidi
dc.contributor.authorMercer, Jenny
dc.date.accessioned2019-10-10T09:53:47Z
dc.date.available2019-10-10T09:53:47Z
dc.date.issued2019-11-26
dc.identifier.citationSeage, C.H., Glover, E. and Mercer, J. (2019) 'Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals', Journal of Patient Experience, p.2374373519883497. DOI: 10.1177/2374373519883497
dc.identifier.issn2374-3743
dc.identifier.urihttp://hdl.handle.net/10369/10769
dc.descriptionArticle published in Journal of Patient Experience on 26 November 2019, available open access at: https://doi.org/10.1177/2374373519883497.en_US
dc.description.abstractObjectives: Pernicious Anaemia (PA) is a chronic condition caused by vitamin B12 deficiency. This is a qualitative study using interpretative phenomenological analysis (IPA); which aimed to explore the patients lived experience of diagnosis and treatment. Methods: Eleven semi-structured interviews were conducted with PA patients, these covered participants’ diagnostic and treatment journeys, the responses of others to their diagnosis and the role health professionals have played in their medical care. Interviews were analysed for recurrent themes using IPA. Results: Three superordinate themes were identified: ‘The struggle to achieve a diagnosis’, ‘The significance of a diagnosis’ and ‘Battling for sufficient treatment’. Participants were dissatisfied with their medical care due to diagnostic delay, insufficient treatment and poor relationships with their health professionals. Many experienced, anticipated, and internalized stigma, which led to a reduced quality of life and withdrawal from the medical profession. Discussion: Participants’ interactions with their health professionals hindered their adaptation to their condition this affected their psychological and physical wellbeing. Increased clinician awareness of stigma in the PA population symptoms and effective patient-centred communication is required.en_US
dc.language.isoenen_US
dc.publisherSAGEen_US
dc.relation.ispartofseriesJournal of Patient Experience;
dc.titleReceiving a diagnosis of Pernicious Anaemia: exploring experiences of relationships with health professionalsen_US
dc.typeArticleen_US
dc.identifier.doihttps://doi.org/10.1177/2374373519883497
dcterms.dateAccepted2019-09-21
rioxxterms.funderCardiff Metropolitan Universityen_US
rioxxterms.identifier.projectCardiff Metropolian (Internal)en_US
rioxxterms.versionAMen_US
rioxxterms.licenseref.urihttps://creativecommons.org/licenses/by-nc-nd/4.0/en_US
rioxxterms.licenseref.startdate2019-10-10
rioxxterms.funder.project37baf166-7129-4cd4-b6a1-507454d1372een_US


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