Uncovering self-management needs to better design for people living with lymphoedema

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Author
Kopanoglu, Teksin
Beverley, Katie
Eggbeer, Dominic
Walters, Andrew
Date
2019-11-13Acceptance date
2019-10-25
Type
Article
acceptedVersion
Publisher
Taylor and Francis Online
ISSN
2473-5132
2473-5140 (online)
Embargoed until
2021-05-13
Metadata
Show full item recordAbstract
This paper reports on the application of design-based tools used to uncover the needs of people living with a chronic condition. It was built on increasing rhetoric calling for greater involvement of patients in the creation of appropriate support mechanisms and presents a means to achieve this using design approaches and tools. The paper presents the development and use of scenario-based design probes to facilitate the participation of People Living with Lymphoedema (PLWL) early in the design process. Lymphoedema is a chronic condition requiring a cumbersome everyday management routine. Self-management is necessary to increase quality of life and decrease complications and hospitalisation. However, consistent practice of self-management among PLWL is low and the need to improve support is recognised. This research explored how PLWL’s transitions towards becoming experts of their condition might be supported. Literature describing the lymphoedema experience was systematically investigated from a behavioural perspective to develop scenario-based probes. These probes provided rich insights by facilitating the envisioning of alternative futures to self-management support with interview participants with lymphoedema. To inform the design of better support for chronic conditions, the stages and components of behaviour change for lymphoedema self-management and the associated support needs are presented.
Journal/conference proceeding
Design For Health;
Citation
Kopanoglu,Teksin, Beverley, Katie, Eggbeer, Dominic & Walters, Andrew (2019) 'Uncovering self-management needs to better design for people living with lymphoedema', Design for Health, 3 (2), pp. 220-239, DOI: 10.1080/24735132.2019.1686326
Description
Article published in Design for Health available at https://doi.org/10.1080/24735132.2019.1686326
Sponsorship
Cardiff Metropolitan University (Grant ID: Cardiff Metropolian (Internal))
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