Uncovering self-management needs to better design for people living with lymphoedema
Taylor and Francis Online
MetadataDangos cofnod eitem llawn
This paper reports on the application of design-based tools used to uncover the needs of people living with a chronic condition. It was built on increasing rhetoric calling for greater involvement of patients in the creation of appropriate support mechanisms and presents a means to achieve this using design approaches and tools. The paper presents the development and use of scenario-based design probes to facilitate the participation of People Living with Lymphoedema (PLWL) early in the design process. Lymphoedema is a chronic condition requiring a cumbersome everyday management routine. Self-management is necessary to increase quality of life and decrease complications and hospitalisation. However, consistent practice of self-management among PLWL is low and the need to improve support is recognised. This research explored how PLWL’s transitions towards becoming experts of their condition might be supported. Literature describing the lymphoedema experience was systematically investigated from a behavioural perspective to develop scenario-based probes. These probes provided rich insights by facilitating the envisioning of alternative futures to self-management support with interview participants with lymphoedema. To inform the design of better support for chronic conditions, the stages and components of behaviour change for lymphoedema self-management and the associated support needs are presented.
Design For Health;
Kopanoglu,Teksin, Beverley, Katie, Eggbeer, Dominic & Walters, Andrew (2019) 'Uncovering self-management needs to better design for people living with lymphoedema', Design for Health, 3 (2), pp. 220-239, DOI: 10.1080/24735132.2019.1686326
Dynodwr Gwrthrych Digidol (DOI)https://doi.org/10.1080/24735132.2019.1686326
Article published in Design for Health available at https://doi.org/10.1080/24735132.2019.1686326
Cardiff Metropolitan University (Grant ID: Cardiff Metropolian (Internal))
Yn dangos eitemau sy’n perthyn drwy deitl, awdur, pwnc a chrynodeb.
Kopanoglu, Teksin; Eggbeer, Dominic; Walters, Andrew (Design Research Society, 2018-06-25)This study investigates the experience of people with the chronic medical condition lymphoedema, to inform the design of new products. Articles from literature that describe lived lymphoedema experiences are thematically ...
Reflexology for the management of secondary lymphoedema in patients affected by treatment for breast cancer. An exploratory study. Kay, Sally (Cardiff Metropolitan University, 2011)Background: Breast cancer is the most common cancer in the UK. After treatment, approximately 20% of people suffer lymphoedema. With increased incidence and improved breast cancer survival rates, more people are living ...
Chang, Woan Ching; Chew, Esyin (Singapore Nurses Association, 2016)Many literatures support the use of information technology (IT) in chronic disease management to improve self-efficacy and health outcomes. Innovative solutions embedded in health IT proven to assist providers to communicate, ...