Show simple item record

dc.contributor.authorPhillips, Rhiannon
dc.contributor.authorMcLaughlin, L.
dc.contributor.authorWilliams, D.
dc.contributor.authorWilliams, H.
dc.contributor.authorNoyes, J.
dc.contributor.authorJones, C.
dc.contributor.authorOleary, C.
dc.contributor.authorMallett, C.
dc.contributor.authorGriffin, S.
dc.date.accessioned2021-03-09T16:47:12Z
dc.date.available2021-03-09T16:47:12Z
dc.date.issued2021-03-03
dc.identifier.citationPhillips, R., McLaughlin, L., Williams, D., Williams, H., Noyes, J., Jones, C., Oleary, C., Mallett, C. and Griffin, S. (2021) 'Engaging and supporting women with chronic kidney disease with pre‐conception decision‐making (including their experiences during COVID 19): A mixed‐methods study protocol',. Journal of Advanced Nursing. https://doi.org/10.1111/jan.14803en_US
dc.identifier.issn1365-2648
dc.identifier.urihttp://hdl.handle.net/10369/11336
dc.descriptionArticle published in Journal of Advanced Nursing available open access at https://doi.org/10.1111/jan.14803en_US
dc.description.abstractAim To report a protocol for a qualitative study to better understand the key factors that influence decision making about pregnancy from women's perspectives and to use these data to develop a theoretical model for shared decision‐making tools for the multiple stakeholders. Design Mixed‐method design using online surveys (with validated components) and purposively sampled follow‐up semi structured interviews. Methods Funded from September 2020 for 12 months. Online surveys of adult women (aged 18–50) identified via all Wales kidney database (n ≥ 500), additional recruitment through multidisciplinary healthcare professionals, relevant third sector organizations and social media. Follow‐up in‐depth qualitative interviews with n = 30 women. Linear regression models to identify associations between shared decision‐making preferences and clinical and psychosocial variables. Qualitative interviews will use a visual timeline task to empower women in taking control over their narratives. Qualitative data will be fully transcribed and analysed thematically, based around a chronological and theoretical (theoretical domains framework) structure that maps out key challenges and opportunities for improved decision support in the care pathway. Visual timelines will be used during stakeholder consultation activities, to enable us to co‐create a map of current support, gaps in provision, and opportunities for interventions. Quantitative data will be analysed descriptively to characterize our cohort. We will assemble a multidisciplinary shared decision‐making intervention development group and provide ongoing stakeholder consultation activities with patient and public representatives. Discussion Outcomes will support new learning into; the ways women's knowledge of kidney disease may affect family planning and pregnancy, their needs in terms of psychological and social support, and how they weigh up the pros and cons of starting a family. Impact Evidence will inform the design of new shared decision‐making tools to better support women with the complex and often emotional decisions about having children while living with kidney disease.en_US
dc.language.isoenen_US
dc.publisherWileyen_US
dc.relation.ispartofseriesJournal of Advanced Nursing;
dc.titleEngaging and supporting women with chronic kidney disease with pre‐conception decision‐making (including their experiences during COVID 19): A mixed‐methods study protocolen_US
dc.typeArticleen_US
dc.identifier.doihttps://doi.org/10.1111/jan.14803
dcterms.dateAccepted2021-02-02
rioxxterms.funderCardiff Metropolitan Universityen_US
rioxxterms.identifier.projectCardiff Metropolian (Internal)en_US
rioxxterms.versionVoRen_US
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by/4.0/en_US
rioxxterms.licenseref.startdate2021-03-09
rioxxterms.funder.project37baf166-7129-4cd4-b6a1-507454d1372een_US


Files in this item

Thumbnail

This item appears in the following collection(s)

Show simple item record