Parents’ Perceptions of the Surgery Involved in Cleft Palate
Cardiff Metropolitan University
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As appropriate for the Cleft Palate-Craniofacial Journal Objective: The purpose of this project was to investigate parents’ perceptions of the surgery involved in Cleft Lip and/or Palate. Design: Self-administered retrospective questionnaires, and a semi structured interview to discuss the emergent themes from the questionnaire. Participants: Ten parents of children with a Cleft completed the questionnaire. Two parents then undertook a semi-structured interview. Main Outcome Measures: Experiences of surgery, perceptions of the support received and the information that had been given. Results: Five key themes were identified; The Role of the Professional, Addressing Practicalities, Emotional Response to the Cleft, Time Management and Preparation. Specific themes were then discussed further in the semi-structured interview. The main areas of strength identified by the parents were; the characteristics of the Cleft team, support received from family and friends and the flexibility of the Cleft team. Areas identified for further development were; input from the Cleft team post hospital discharge, the communication between the Cleft team and other health professionals, and a lack of practical information around the time of surgery. Conclusion: Each parent has a unique experience during their child’s surgery, and the Cleft team needs to be flexible to reflect this. This study suggests that the efficacy of parent support schemes is an area for further research. In addition, investment in the Cleft team training other health professionals such as Sonographers and ward staff would be highly beneficial.
B.SC.(Hons) Speech and Language Therapy
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