Identifying the Needs of Family Members Caring for a Younger Person with Dementia
Cardiff Metropolitan University
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Background: Research investigating the impact of psychosocial issues upon the family member caring for a person with dementia, have been dominated by quantitative studies. Few studies have explored the first-hand accounts of what it is like to live and care for a person with young onset dementia. Objective: To identify the needs of the family member caring for a loved one with young onset dementia by exploring the carers lived experiences. To analyse qualitatively the carers interpretation of what it is like to be a carer and the issues that have an impact on them. Method: Semi-structured interviews were conducted with six carers recruited from the Alzheimer’s Society’s young onset dementia carers support group. Data were collected and analysed using Interpretive Phenomenological Analysis Results: The results showed that support networks, social lifestyle, financial, health and wellbeing issues have a significant impact upon the carer. Conclusion: This study offers recommendations for health professionals, including speech and language therapists working with younger people with dementia and their carers. Providing specialist support and advice to the carers, will equip them to better deal with the burden of caring for a loved one.
B.Sc. (Hons) Speech and Language Therapy
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