Design for Multi-Dimensional Stages of Lymphoedema Self-Management

Abstract

This study investigates the experience of people with the chronic medical condition lymphoedema, to inform the design of new products. Articles from literature that describe lived lymphoedema experiences are thematically synthesised from a behavioural lens. People with lymphoedema go through stages toward achieving levels of expertise, motivation and routine, to maintain effective self-management in the long-term. A preliminary framework is proposed that presents four themes (competence, autonomy, daily routine and socio-psychological) and their stages. The purpose of the framework is to assist designers in understanding how people with lymphoedema experience self-management. Focusing on facilitating a transition through these multi-dimensional stages is suggested as a means to aid the design of supportive health products. Related design implementations are discussed through product examples. This framework is developed as part of a wider research project, where the following stages will be concerned with refinement of the framework through primary research with people with lymphoedema and their healthcare providers.